This booklet is also for family and friends that are looking for further understanding multiple myeloma. About this booklet 1 about this booklet this booklet is about a type of cancer called myeloma. Multiple myeloma patient handbook multiple myeloma patient handbook 1 this resource has been designed for. The imfs patient handbook is designed to help you to understand multiple myeloma. Myeloma is a cancer of the plasma cells in the bone marrow.
Multiple myeloma is a cancer of the plasma cells in the bone marrow seek medical care for unexplained pain, nausea, vomiting, weight loss, vision problems, or chronic tingling or numbness there is no cure for multiple myeloma. Multiple myeloma is the second most common blood cancer in the united states and, sadly that population is growing, climbing to 6. Understanding multiple myeloma pathogenesis in the bone. The international myeloma foundation imf is the first and largest myeloma specific charity in the world. Understanding and managing chemotherapy side effects get help coping with nausea and vomiting, fatigue, neuropathy, diarrhea, constipation, mouth sores and hair. Its important to eat what you can, when you can, to help keep your energy up. Sarclisa binds to myeloma cells to kill them directly, and also recruits other immune system cells to kill myeloma cells. The myeloma cells fill up the bone marrow and can damage the bone. The imfs understanding series of cancer information booklets is designed to acquaint you with specific multiple myelomarelated tests, treatments and. Understanding your test results multiple myeloma explained.
Check the publication date above to ensure this copy of the booklet is up to date. Monoclonal gammopathy of uncertain significance mgus. Sometimes an isolated collection of myeloma cells is found in only one site. With myeloma the plasma cell makes lots of abnormal cancerous plasma. There are different types of myeloma but they are usually treated in the same way. We hope this booklet will help you, your family and friends understand how. This booklet will help you in treatment keep track of important information such as test results, treatment cycles and side effects to report. The imfs understanding series of cancer information booklets is designed to acquaint you with specific multiple myelomarelated tests, treatments and therapies, supportive care measures, and. This booklet is for people who are having tests or investigations and for people who have been told they have myeloma. Treatment of multiple myeloma focuses on decreasing the severity of symptoms with medications, stem cell transplants, bisphosphonate therapy, platelet transfusions. With the recent news about tom brokaws myeloma diagnosis, there has been more interest in what multiple myeloma is. Mar, 2012 a detailed booklet that describes causes, symptoms, signs, diagnosis, treatments, stages of multiple myeloma, with information on getting help and coping. Incidence in the population 15th of multiple myeloma annual incidence 9 per million palumbo, a, rajkumar sv. Many people feel understandably shocked and upset when told they have myeloma.
Founded in 1990 with more than 350,000 members in 140 countries, the imf serves myeloma patients, family members, and the medical community. Although multiple myeloma affects the bones, it begins in plasma cells. Myeloma is often called multiple myeloma because most people 90% have multiple bone lesions at the time it is diagnosed. While some individuals may not experience any symptoms, some common symptoms of multiple myeloma may include bone pain or broken bones, fatigue and infection. Myeloma can sometimes reduce how well your kidneys work, so it is important to drink a lot of fluids to help your kidneys work well 2 to 3 litres or 3 to 5 pints of liquid per day is. Dec 29, 2017 written by a researcher and a physician with over 20 years of experience treating patients with myeloma, understanding multiple myeloma provides a comprehensive overview of symptoms, diagnosis, treatment options, supportive care, and much more.
A person who is a family member, friend or loved one of someone with myeloma. It can cause bone pain, bone thinning and sometimes breaks the bones called fractures. To obtain a more recent copy, phone the cancer council helpline on 11 20. Myeloma begins when abnormal plasma cells, known as myeloma cells.
This lab tracker booklet explains common tests for patients with multiple. Share due to the covid19 outbreak the myeloma uk office is closed and we are unable to send out any physical copies of our publications. Myeloma is a type of cancer that develops from plasma cells in the bone marrow. Understanding multiple myeloma the james cancer hospital. In the uk, around 5,500 people are diagnosed with myeloma each year. Plasma cells are a type of white blood cell made in the bone marrow. The imfs understanding series of cancer information booklets is designed to acquaint you with specific multiple myelomarelated tests, treatments and therapies, supportive care measures, and common adverse events. Its diagnosed and treated differently from multiple myeloma. Written by a researcher and a physician with over 20 years of experience treating patients with myeloma, understanding multiple myeloma provides a comprehensive overview of symptoms, diagnosis, treatment options, supportive care, and much more. Caregiving for a loved one with multiple myeloma new.
This booklet is designed to help patients with multiple myelomaand their friends, families, and caregiversbetter understand this disease. This booklet is designed primarily to help patients with newly diagnosed multiple myeloma and their friends and families better understand this disease. Spep is used to separate and identify the presence and levels of m protein in the blood. Each copy makes the same antibody protein or m spike. Perhaps you have already started treatment or you are discussing different treatment options with your doctor. Check the publication date above to ensure this copy is up to date. Our publications include a series on understanding your diagnosis, living with cancer and quit smoking guides. This booklet explains common tests for patients with multiple myeloma. Although multiple myeloma remains incurable, novel targeted agents, used alone or in combination, have shown great promise to overcome conventional drug resistance and improve patient outcome. Hideshima t1, mitsiades c, tonon g, richardson pg, anderson kc. Multiple myeloma features abnormal proliferation of plasma cells in the bone marrow, destructive bone lesions, and the production of abnormal proteins, specifically antibodies. The cancerous plasma cells, or myeloma cells, rarely enter the blood stream. It is a great booklet, it has normal values, an area to record their labs and a description of each lab with a picture.
The imfs understanding series of cancer information booklets is designed to acquaint you with specific multiple myeloma related tests, treatments and therapies, supportive care measures, and common adverse events. This lab tracker booklet explains common tests for patients with multiple myeloma. The process of going from a normal plasma cell to a myeloma cell can take years or decades. Comprehensive, insightful, and compact, understanding multiple myeloma is an essential guide for anyone coping with the physical and emotional turmoil of this disease. They are part of the immune system and help fight infection. A helpful booklet published by the imf explains important details about blood stem cell transplants. A guide to protecting your health posttransplant, including recommended tests and procedures, published by the center for international blood and marrow transplant research. Multiple myeloma is cancer that starts in the bone marrows plasma cells. Read it now enter your mobile number or email address below and well send you a link to. But in people with myeloma, the process is out of control and large numbers of abnormal plasma cells myeloma cells are made. If you have any questions about your test results, discuss them with your. Over time these abnormal plasma cells may collect in the bone marrow and bones.
Symptoms and signs include anemia, skin lesions, weakness, and bone fractures. Multiple myeloma may be indicated by increased kappa free light chains and an increased kappalambda ratio. Some myeloma treatments can affect how much and what you want to eat. Those who have been living with myeloma for some time, but would like to refresh their understanding of the disease or fill in any missing pieces. Stem cell transplants san fernando valley multiple myeloma. We hope this booklet will help you, your family and friends understand how myeloma is diagnosed and treated. Reference ranges in this booklet are adapted from mayo clinic laboratory test reference values. Read about multiple myeloma prognosis, life expectancy, stages, treatment, diagnosis, and causes. Multiple myeloma also known as myeloma and plasma cell myeloma is a cancer of the immunoglobulinproducing plasma cells found in the bone marrow. This booklet has been written to help you and your family or whanau understand. Myeloma is a type of blood cancer that develops from plasma cells. The imf is helping to improve the quality of life of myeloma patients while working toward prevention and a cure through a wide range of programs in.
Understanding multiple myeloma is a comprehensive book that can be a guide to anyone with multiple myeloma. A plasma cell is a type of white blood cell found in the bone marrow. Multiple myeloma is a cancer of certain cells of the bone marrow called plasma cells. Answer four quick questions to get specially selected content for you. This is why it is sometimes called multiple myeloma. Whether you are a newly diagnosed patient or a loved one of someone suffering from multiple myeloma, this book offers help. Plasma cells are a type of white blood cell found in the bone marrow. It also explains how it is diagnosed and treated, and ways to cope with myeloma. A detailed booklet that describes causes, symptoms, signs, diagnosis, treatments, stages of multiple myeloma, with information on getting help and coping. One or more of these crab symptoms indicates symptomatic myeloma, which requires treatment. Understanding your multiple myeloma lab tests velcade. If the bone marrow is full of myeloma cells, it can be harder.
What you need to know about multiple myeloma my care plus. Understanding multiple myeloma pathogenesis in the bone marrow to identify new therapeutic targets. Research plays a critical role in building a greater understanding of blood cancers and conditions. Our range of publications covers every aspect of myeloma and they are all available for immediate download below. This 86 page on line booklet is probably the best comprehensive resource on multiple myeloma. Due to the covid19 outbreak the myeloma uk office is closed and we are unable to send out any physical copies of our publications. Inside this booklet 2 introduction 2 myeloma basics 3 signs and symptoms 5 diagnosis staging and prognostic factors 15 treatment options 23 measuring treatment response 26 treatment options for relapsed and refractory myeloma 29 research and clinical trials 32 complications, side effects and supportive care 37 financial concerns 38 followup care 39 related diseases. Abnormal serum protein electrophoresis pattern in a patient with multiple myeloma. Fact sheet monoclonal gammopathy of unknown significance mgus fact sheet asymptomatic myeloma.
Understanding mgus and smoldering multiple myeloma. Recent oncogenomic studies have further advanced our understanding of the molecular pathogenesis of multiple myeloma, providing the framework for new. The international myeloma foundation imf is the first and largest myelomaspecific charity in the world. If you or someone you care for has been diagnosed with myeloma, you may be feeling anxious or a little overwhelmed. Your doctor uses them to help diagnose and assess your multiple myeloma, and monitor your progress and side effects.
Understanding myeloma myeloma, also known as multiple myeloma, is a cancer of plasma cells mature blymphocytes that usually arises in the bone marrow. As a patient, becoming informed about the nature and treatment of this disease can help facilitate a. In myeloma, the cells in the bone marrow that are cancerous are plasma cells these are white cells, and where 80 percent of their job is to make antibodies. The understanding sarclisa isatuximabirfc booklet discusses a novel anticd38 monoclonal antibody that is approved for patients with relapsed and refractory myeloma. Multiple myeloma is a blood cancer that begins in white blood cells called plasma cells. This booklet has been prepared to help you understand more about myeloma. Dr jane estell, senior staff specialist, haematology department. This booklet has been written to help you and your family or whanau understand more about myeloma.
It also has information for family members, carers and friends. This booklet includes a section with brief descriptions. Multiple myeloma information booklets int myeloma foundation. In multiple myeloma, one plasma cell goes bad and makes multiple copies of itself clones. When the plasma cell myeloma develops into multiple lesions it becomes multiple myeloma. Often multiple myeloma symptoms go unnoticed, delaying a myeloma prognosis. Questions and answers provides information about bone cancer. Cancer society, the total new cases of multiple myeloma diagnosed annually in canada are estimated at 2,550 1,450 men and 1,100 women, representing an incidence of 5 in 100,000 people. A great resource for both new and veteran patients. Understanding and managing chemotherapy side effects get help coping with nausea and.
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